Showing posts with label Information. Show all posts
Showing posts with label Information. Show all posts

Tuesday, November 13, 2012

Singapore - Patients’ perception of risk: informed choice in prenatal testing for foetal aneuploidy


Choolani M, Biswas A
Correspondence: A/Prof Mahesh Choolani, mahesh_a_choolani@nuhs.edu.sg

ABSTRACT

Each of us perceives risk differently, and so do our patients. This perception of risk gets even more complex when multiple individuals and interactions are involved: the doctor, the patient-pregnant mother, the spouse-father and the foetus-unborn child. In this review, we address the relationship between different levels of information gathering, from clinical data to experiential knowledge – data, information, knowledge, perception, attitude, wisdom – and how these would impact the perception of risk and informed consent.

We discuss how patients might interpret the risks of the same event differently based upon past experiences, and suggest how risk data could be presented more meaningfully for patients and family to assimilate for informed decision making.

Finally, we demonstrate how patients’ expectations and risk management can impact scientific research and clinical progress by way of the most topical subject of risk screening in pregnancy – non-invasive prenatal testing using cell-free DNA in maternal plasma.

Keywords: cell-free foetal DNA, heuristics in medicine, informed consent, non-invasive prenatal testing, perception of risk

Singapore Med J 2012; 53(10): 633–637

Monday, May 7, 2012

USA - How an EMR makes connecting with the patient more difficult


I have the great privilege of being a medical educator. Every day, I have an incredible time working with internal medicine residents at their continuity clinic, teaching the art of ambulatory medicine.

Our working environment here is academically rich and fulfilling. The name of the legendary Dr. Martin Leibowitz (an iconic figure in ambulatory medicine here) stands outside our conference room as a constant reminder of how medicine is practiced and taught.

 There is a large oval table at the center of the conference room, constantly surrounded by venerable attendings, interspersed with curious residents, discussing all the difficult cases of the day. There is the constant buzz of organized chaos like a stock exchange that is addictive and keeps things fun and enjoyable.

Although this positive vibe has never changed, the working environment has transformed since I first joined in 2009. The conference table used to be littered with text books like Harrison’s, Netter and a variety of dermatology books. In between the people and books sat heavy, tattered orange colored paper charts. Some were just a few pages, some hundreds, all documenting a litany of complaints, physical exam findings, test results, insurance documentation, medication lists and well thought out plans by generations past of neophyte doctors.

Blue, black, red, green ink on yellow oxidized pages, all fascinating yet often illegible. My intrigue with these historical documents quickly faded, and the burden of having to flip through hundreds of abstruse pages became quite frustrating. The sight of these bright orange charts piled on my desk at the end of the day, became a nauseating reminder of the inefficiencies and dangers of paper documentation. Our electronic medical record (EMR), slated to be release 6 months after my start date, could not come soon enough.

When our  EMR era began, it was a cataclysmic event. The process of seeing a patient with the computerized elephant in the room was a culture shock for some the attendings and residents. But we integrated slowly, utilizing a light schedule, and a lot of one to one attention for our residents.

In 2 years we overcame a lot of the initial technical problems and are on our way to making this a very successful transition. The hardest part of this change for me, had nothing to do with my personal battles with the EMR. Rather, the presence of the EMR created an entire new domain of education I have to provide for my trainees.

In addition to medicine, I find myself teaching how to create macros or imbed digital pictures into the electronic record. I’m teaching how to incorporate a myriad of digital tools to better care our aging complex population. It’s become clear that my role as an educator goes beyond teaching classical medicine.

It also involves teaching how medicine will be practiced in the future utilizing technology such as social media and an EMR. As an advocate for the advancement of technology in medical practice, I feel fortunate to have an audience of bright trainees to share my enthusiasm about the future of medicine.


But this technological leap in our practice has had a price.

Although the placard of Dr. Leibowitz remains steadfast, the working environment has drastically changed. The conference table often sits empty, replaced by several desktops sitting at the periphery of the room. All the textbooks stand neatly stacked in a corner, collecting dust, as Google images replaces dermatology books, and online resources replaces most texts.

The sound of vibrant debate and chart perusal has been replaced by the clicking and clacking of keyboards. Whereas in the past, 50% of my encounter time would be spent discussing each case, and the other 50% seeing the patient, my attention is split in three ways now. 33% each , for patient, trainee and EMR. Now I have less time to get to know and personally connect with each patient. Now there is less time to discuss medicine with my trainees.

For new doctors, I wonder if it’s more important to spend a few extra minutes to discuss how to manage a COPD exacerbation in the outpatient setting, than it is to teach how to multi-click and renew 14 medicines using “E-scribe”. With this whole new domain to teach, given the same time constraints, I’ve had to bring home work quite often, which is begrudgingly easier now with an electronic record.

Despite these difficulties, I continue to love my role as a medical educator. The day to day issues are minuscule compared to the greater problems in medicine and society. I continue to stay motivated by the idea that my tutelage in medicine and how it interfaces with modern technology will prepare them for a future that will need doctors that are comfortable and successful in the both the real and digital realms.

Shabbir Hossain is an internal medicine physician who blogs at  Shab’s Sanatorium

Thursday, May 3, 2012

USA - Does Privacy Still Matter?


Consumers say that they are concerned about privacy, but their actions say otherwise.

Who would have guessed that the Illinois DMV — really, any DMV — would be more progressive than Facebook? I renewed my driver's license last week and, with the stroke of an arcane pen to an arcane piece of paper, gave notice that I'm an organ donor.

As you may have heard, Mark Zuckerberg on Tuesday revealed a new Facebook status update: organ donor. Facebook trailing the DMV? Really? What's next, Facebook making people take a virtual number and stand in a seemingly endless line until you can "like" something?

Now, I am not making light of the monumental impact that Facebook's announcement could have — really, is having. According to various news reports, by the end of Tuesday, "6,000 people had enrolled through 22 state registries, according to Donate Life America, which promotes donations and is working with Facebook. On a normal day, those states together see less than 400 sign up."

Organ donation is a serious issue and deserves greater attention from all of us. The publicity generated by Zuckerberg's announcement can only help those 114,236 people waiting for an organ and may, just may, save one of the 18 people who will die today because they were on that list.

The fact that so many people responded so quickly to the Facebook announcement shouldn't really surprise anyone. For an ever-growing segment of the population, Facebook and other social media are their primary means of communicating, and health status is one of the main updates. Roughly one-third of adult consumers now use social media to discuss health-related issues, according to a recent PwC Health Research Institute survey.

Among the key findings: 42 percent said they've used social media to access health-related consumer reviews and 25 percent have posted about their health experience.

Lest you still think this is just some consumer fad and won't impact hospitals and other providers, take note that some major players are figuring out new ways to tap into the social media craze. 


At HIMSS last February, Aetna CEO and President, Mark T. Bertolini discussed new apps that the company is developing to let members do Facebook-like searches on doctors. Some health systems are reportedly developing apps that will let patients share physician profiles with their Facebook friends. Others are sure to follow.

But here's the disconnect for me: "Privacy and security are top consumer concerns when sharing their health information through social media. Consumers are most concerned with personal health information being shared in public (63 percent) and information on social media being hacked or leaked (57 percent)," the PwC report notes.

So, security and privacy are a top concern, yet people are more than willing to share incredibly personal details about their health status with 700 of their closest "friends." We all have one or more of those friends. You know, the ones who post basically post a direct transcript from their most recent visit to the doctor.

As Zuckerberg so poetically stated a couple of years ago, privacy is "no longer a social norm." The challenge, it seems, for the health care industry, is how to navigate this landscape that seems to change in the blink of eye.

Matthew Weinstock
H&HN Senior Editor

The opinions expressed by authors do not necessarily reflect the policy of Health Forum Inc. or the American Hospital Association.